my daily routine consists of: 2puffs twice a day of combivent inhaler, 1neb of pulmozyme, every other month I do a pari neb of cayston 3x a day, && 1vest session of 20mins. I know I need to do my vest at least twice a day, so starting tomorrow it'll be the first thing I do when I wake up. promise :)
yesterday I got my port flushed for the very first time since having it put in && I was a nervous wreck. I almost canceled && rescheduled just so I could push it off another day, but I've been trying to get out of that type of mindset for awhile now && cant be afraid of the things that could potentially save my life. I dont care how much I may not enjoy it, this whole disease I was born w is much bigger than just me. && I honestly think it would be so selfish of me to not try everything in my power to keep myself healthy && living as long as I possibly can, when it comes right down to it. I owe everybody that.
so like I've said before, I have only been honestly open about my cf since last month && I've met so many new ppl w this disease online. && I've only known a couple in person. but I didnt realize how much of an effect it would have on me until I tried it. I didnt know it could help so much in just the little I've done. I hope to someday help somebody else w this disease. whether it be just by lending an open ear, or volunteering w the foundation.
xx
