|( waiting on the doctor )|
my fev1 was 37% today && when I'm in the hospital, it goes up to 42%. however, 37 is an improvement for me. so I'm okay w it for the most part.
so ever since my ICU scare back in january, I've considered myself "scared straight" in a way. && no matter how much this disease actually scares me, I like the fact that I think about it differently now. of course its all for the better. I basically had my head in the sand whenever someone outside from my dr's office or myself wanted to talk to me about it. aka my family. I know that we as CF'rs all deny, to an extent, that we actually have this terrible disease. && its understandable, but also very naive. now it just breaks my heart when I hear from fellow CF'rs who dont exactly take care of themselves like they should. mild case or not.. because I was once there && now I see what my family must have felt. theres just so much you can do for someone. you cant physically make them do their meds/treatments, but I try to be there for others as much as I can. especially now that I'm open about it && love connecting w other CF'rs.
|( right after I got the call )|
|( improvising at its finest )|
back to the whole transplant idea, I would honestly be nowhere w out the support team I have. my family && boyfriend are my rockkk. I got so lucky w them being so supportive && just wanting the best for me, whether that means pushing me to do my treatments/meds or just being active. && I cant thank them enough for all that they do.
its april 25th soooooooooooooooooooooooo that means just 6more days til #CFawarenessmonth !! I've never "celebrated" may as our awareness month before, because I either missed it or just didnt know when it was. so I'm planning on posting a picture every day of the month to help raise awareness. you could say that I'm just a tad excited ;)
good thoughts. good vibes. good wishes. && so it is.
( PS, shoutout to my sister +Nicole Dean, guess what I'm eating atm? nalley chili ! )